She lived like a teenager her age, but never failed to pass on strong messages. Living with Hutchinson-Gilford syndrome, also known as progeria, a very rare genetic disorder that causes premature aging, 15-year-old YouTuber Adalia Rose Williams wanted to inspire others despite her suffering. But in an Instagram post, her family broke tragic news. “On January 12, 2022, Adalia Rose Williams was released from this world. She was born there and quietly left it, but her life was far from it. She touched millions of people and left her behind. bigger footprints on everyone she knew. She’s no longer in pain now, and she can finally dance to all the music she loves. I really wish this wasn’t our reality, but unfortunately We do. We want to thank all the people who loved and supported her. Thank you to the doctors and caregivers who worked for years to keep her healthy, “we read.
Diagnosed at the age of three months, the teenager had exceeded the average life expectancy of people with this disease, estimated at 13 years. Despite everything, she had decided to launch on Youtube in 2012, and had quickly attracted the public, touched by her story. She published videos where she presented her favorite outfits, talk about makeup, or discover her daily life surrounded by her family and friends. “I’m heartbroken for you all”, “Adalia we admired you so much. You were a beacon of hope on this earth, “” Some humans are too big for this little existence, you were one of them, “subscribers wrote below the news of his death.
An extremely rare disease
Progeria is a very rare disease. Barely 20 children are affected in Europe, according to the AFM-Telethon site. Worldwide, this disease affects 400 people according to data from the Progeria Research Foundation. “It manifests itself by signs of premature and accelerated aging, in particular breakage of the growth curve, severe osteoporosis and atherosclerosis, with early death (on average around 13 years) mainly by obstruction of the coronary vessels (myocardial infarction) or of the brain (cerebral attack). No effective treatment is available to date “, explains the AFM.
Adalia Rose Williams © Instagram