Edith Lemay and Sebastien Pelletier have decided to embark on an incredible and moving adventure. The couple, originally from Canada, are currently touring the world with their four children. The reason ? Three of them will soon lose their sight. According to information reported by CNN, they are suffering from a rare genetic disease. Apart from little Leo, 9 years old, Mia, the eldest, Colin, 7 years old and Laurent, 5 years old, suffer from retinitis pigmentosa, a serious pathology which leads to a progressive degeneration of light-sensitive cells in the retina. Eventually, it progresses to partial or total blindness. Currently, no treatment exists.
Determined, Edith and Sebastien did not let themselves be defeated by this terrible diagnosis. On the contrary, the parents made the choice to travel the whole world with their offspring. The opportunity to offer them wonderful memories. “I said to myself, ‘I’m not going to show them an elephant in a book, I’m going to take them to see a real elephant’. And I’m going to fill their memory with the most beautiful images possible,” said the mother of the family. As for the dad, he said: “Because of this diagnosis, we are in a race against time. We can do nice things at home but there is nothing better than travelling.”
A trip around the world before dark
Edith and Sebastien had planned to leave in July 2020 but because of the Covid and the war in Ukraine, they changed their itinerary. The big departure finally took place in March 2022. The family left Montreal to join Namibia where they were able to marvel at elephants, zebras and giraffes. They then flew to Zambia before passing through Tanzania, Turkey, Mongolia and Indonesia. The little tribe shares its adventures on social networks to the delight of Internet users, touched by their story. “We hope that science will find a cure but in the meantime, we want our children to be equipped in the face of adversity,” concluded the dad.